Hi everyone! Welcome to my little slice of heaven, where I can share what’s on my heart, in my mind and most important, all of my chronic/terminal illnesses! My name is Julianne, although everyone refers to me as Julie, well other than my mother when I’m in trouble. I am recently married to a wonderful man, work full time as a high risk patient liaison/coordinator and absolutely love the life I have. I am a dog mom to three perfect fur babes; Grayson Valor, who is a 5 year old German Shepherd, Hudson Remington is a 7 month old Labradoodle (he looks more lab than poodle) and Bubba, a senior Pitbull mix.
I was recently diagnosed with a rare Primary Immunodeficiency that is considered terminal because of the ghastly effect it has on the body. I also have a number of congenital diseases, a couple deficiencies that make my body move a little slower and keep me inactive, and a complex neurological/vascular disorder.
Needless to say, I’m a walking medical journal. I hope you enjoy reading about my home, my life, and all of my medical complexities.